2nd November 2012
George has done so well at physio today. After some protesting he did some really nice walking. If only he would believe in himself a bit more!!! Sadly I missed recording this lovely moving as I accidently hit the button twice and cancelled it.....opps. Oh well he will just have to do it all again on Monday :-) Now it is the weekend and we can chill out a little.
Last night we had a little halloween party at the hotel for all the SDR kiddies here at the hotel which was fantastic. Fun was had by all the kid's and their families. Brilliant!!
25th October 2012
George has had 2 really good, long nights sleep which has helped all of us to catch up a little. He is being a little superstar in his therapy too. We have had him standing with lovely flat feet and straight legs, he has done some high kneeling and crawling. He has been going on a trike each day and getting faster and faster all the time. Yesterday we took receipt of his first ever walker. We are going to try him on it in therapy this afternoon so watch this space!!!
23rd OCTOBER 2012
George has now had surgery on his hamstrings and heel chords and it went really, really well. He went down for surgery at 08.45 and it was complete by 10.15. Back on the ward he asked for food and within half hour had drank 2 lots of apple juice.had 2 bowls of cereal followed swiftly by a spagetti bolognaise, yoghurt and peaches. Needless to say they let us come home that afternoon which was really nice. So all the invasive operations are now complete and we are settled back in the hotel with just therapy to do each day.
18th October 2012
George has had a more settled night last night. There was no one in the room from lunchtime yesterday so he got some good rest. He will come off some of his med's today and they have just come to measure him for his splints. Mummy slept at the hotel last night as I was soooo tired and feeling poorly. Daddy settled him well and sleeps better in hospitals so they have had an ok night together. I am off to the hospital now to see my boys :-)
17th October 2012
Today was a really tough day. George was awake on and off most of the night and with all the machines making noise constantly Gary and I were awake with him all the night. It was tough as a baby was in our room which we wasn't expecting and the poor little thing was crying so much it really disturbed George. He was also sick a couple of times and starting to have some spasms :-( As the day went on George had periods of time very settled and then was in pain. They roll him every 6 hours and between 4 to 6 hours is when he gets uncomfortable and is sick. They started him on Valium for the spasms, he is taking anti sickness drugs, pain killers, epilepsy drugs and still has the epidural......so really druged up and out of it :-(
16th October 2012
George had SDR surgery today. It was the longest most awful day of my life. He was in surgery for about 5 hours and the waiting was awful. The great thing for us is that they call you every hour from the operating room to tell you what has been done so far and how George is coping. This was a huge, huge bonus and really helped during those long hours of waiting. When we got to see George in recovery he was upset and very dopey. They moved him up to a room shortly afterwards to settle.